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SCI-IEQCC Executive Summary
The period beginning Jan 25, 2019 to December 31st 2020, represents a period of rapid transformation in the
delivery of SCI rehabilitation in the province of Ontario. The hallmarks of this transformation have been the
unification and collaboration of six partner organizations (SCI-Ontario, St Joseph’s Healthcare, Hamilton Health
Sciences, University Health Network, Providence Care and the Ottawa Hospital) under a common mission and
vision. The Consortium's goal is to ensure Optimal and Equitable Health Care Services for all Ontarian's
regardless of where they live, to ensure the functional recovery, health and well-being for individuals living
with Spinal Cord Injury or Disease.
This collaborative initiative, sponsored by the Ontario Neurotrauma Foundation, has benefited and leveraged
group momentum from the support and collaboration with the Health Standards Organization, the National
Rehab Reporting System, the Praxis Spinal Cord Institute’s Rick Hansen Spinal Cord Injury Registry and the IT,
legal and rehabilitation departments of member organizations.
The intangible and most important achievements of the Consortium have been:
1) Development of a “learning health system culture” where individuals and organizations actively
engaged in self-reflection, share expertise, and work to implement structure, process and outcome
indicators and the related best practices pertaining to six prioritized domains of SCI rehabilitation
including emotional wellbeing, sexual health, walking, wheeling, urinary health and skin integrity.
2) Establishment of a quality improvement collaborative comprised of six site implementation teams.
3) Ongoing and meaningful engagement of stakeholders and individuals with lived experience using
epidemiologically sound methods throughout the development of network priorities, indicators, and
best practice implementation - including as members of site implementation teams.
4) Development of a deep understanding of the feasibility, and building capacity, for implementing
practice change among administrators, policy makers, researchers, clinicians and learners.
5) Initial collection of a comprehensive framework of structure, process and outcome indicators linked to
domain specific aims that ensures each indicator is meaningful and the within and across domain
review, brings a deeper understanding of health system performance (Data will be shown in March 30
6) Group advocacy to realize internal and external organizational change.
7) Training of the next generation of health services and systems leaders (postdoctoral fellows/ practice
champions) who understand and value implementation science and the use of indicators to facilitate
changes in culture and outcomes.
8) Provision of real-time feedback to health system leaders within the consortium, regarding the
practicalities and constraints of practice change.
9) Insights into the value of ongoing training and education of rehabilitation staff pertaining to domains of
care valued by persons with lived experience (i.e. sexual health, emotional wellbeing).
10) Opportunities for learners to interact with network members and familiarize themselves with the
Consortium agenda throughout the health system.
11) Establishment of appropriate governance, QI approvals, data sharing agreements, confidentiality and
data transfer procedures.
12) Linkage with other evolving provincial networks
13) Contributed to positive work culture and renewed organizational pride with greater insight into local
program strengths from frontline Consortium staff.
14) Greater cross disciplinary integration for care provision
15) Enthusiasm for ongoing Consortium activity within our member organizations
Next Steps and Planned Opportunities for Network Improvement
1. Sustain and refine current best practices and indicator data collection for the initial six prioritized domains of SCI rehabilitation and implementation of best practices and indicators pertaining to 4 new domains - community participation and employment, self-management, and grasping, reaching and manipulation.
2. Support SCI-Ontario and rehabilitation sites to collect 18-month post rehab admission data and facilitate sharing of the data between the academic health sciences and community partners.
3. Expansion from a provincial to a national network and the addition of Calgary, Edmonton, Halifax, PEI and New Brunswick (funded by Praxis) while maintaining a learning health system culture and high organizational engagement.
4. Inclusion of additional diversity and inclusion criteria (i.e. food and housing security) in the Consortium minimum data set and report card.
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